Thursday

More Snow

"Snow day tomorrow?" Cory wonders?  I doubt it.  


Out on a mission this evening, the roads weren't great...


And I was glad to get back into my own neighborhood

...where my camera doesn't work properly...





...but my driveway looked awfully inviting.





Another day on the road tomorrow...



Sphere: Related Content

Tuesday

HITTING THE ANATOMICAL LOTTERY





Getting the call that you're about to receive a desperately needed organ must be similar to realizing you're holding a winning lottery ticket: you can't believe your luck!!  The longer you've been waiting, the luckier you feel.

My son Jake had been on dialysis four years when we got the call. Because of United Network of Organ Sharing (UNOS) policy that allows "waiting time modification" for pediatric patients, Jake's time on dialsysis was markedly reduced in comparison to adults waiting for kidneys.  According to UNOS, at this moment (11:30 am ET) there are:

~ 105,135 people on the waiting list for life-saving organs
~ 82,860 kidney
~ 15,766 liver

Of the 21,422 transplants that have occurred in 2009 (through September), organs were recovered from only 10,916 donors.  This means that deceased donors (6,011) donated multiple organs, while most living donors (4,905) donated single or partial organs.


MOST WANTED! 
Kidneys

The waiting time for kidneys tends to be longer due to the fact that there are more people waiting for those than any other organ, and because the dialysis option prolongs life for those with kidney failure. (Thank God for dialysis.)

~ Of the 1,628 waiting for kidneys in Louisiana, 160 of those have waited five or more years
~ Of the 7,198 in New York, 732 have waited five or more years
~ Of the 16,616 in California, 2,382 have waited five or more years    
       (Hispanics 6,111; Whites 4,438; Asians 3,042; Blacks 2,565)


With these kinds of odds, it's easy to see why receiving an organ is similar to hitting the lottery.

The Good News

Here in the U.S., federal and state policy changes are making it easier to become a registered donor.  Over the last 18 months, more than 9 million people have designated themselves as organ donors, bringing the U.S. registry up to 80 million.

Are you on that list?  You have the power to change a life.  
Please learn more about what you can do to help:

http://www.donatelife.net


Sphere: Related Content

Sunday

Why Try to Change Me Now?

I'm sentimental
So I walk in the rain.
I've got some habits
That I can't explain...
Could start for the corner
Turn up in Spain.
Why try to change me now?


I sit and daydream...
I've got daydreams galore.
Cigarette ashes,
There they go on the floor.
I go away weekends
And leave my keys in the door.
But why try to change me now?

Why can't I be more conventional?
People talk,
People stare.
So I try
But that's not for me
Cuz I can't see
My kind of crazy world
Go passing me by.

So let people wonder,
Let 'em laugh,
Let 'em frown.
You know I’ll love you
Till the moon's upside down.
Don't you remember
I was always your clown.
Why try to change me now?

Don't you remember
I was always your clown.
Why try to change me?
Why try to change me now?

(Click the link in the title to hear/see a lovely Fiona Apple version of the Frank Sinatra tune.)

Sphere: Related Content

Saturday

Genetics



Red hair and curls.  Mom, Jake and Cory.


I remember when I had my kids, I thought there was no love like the love a mother feels for her child.

I still feel that way.

I see their father in them...try to look for his best qualities.

And I see my own, too.

The obvious physical Chris in Jake is the curly hair.


But he's also very creative and pretty hard working.





The obvious physical Chris in Cory is the red hair.  But he's also a writer and philosopher.






















Myriam (Just Because Today), thanks for showing some pictures of your kids a few days ago.  It made me take a look at my own.  And want to share.



Sphere: Related Content

Wednesday

Meanwhile, life goes on (photos!)

Upstate (western?  Finger Lakes region?) of New York is wonderful.



Tempted by park trails...




And Christmas ferns...(I remember the Christmas fern because the, um, fronds[?] look like Christmas stockings.  See?)



At the Ellison Park trail in Rochester, I encountered a family of mushrooms...




And my camera's battery (after hours and hours of faithful service) crapped out right after I took a photo of a tree with the sun in the foreground.  (Do I mean background?  I don't know photography terminology.) It was kind of a cool shot...




Kathleen's transition (because I hate to say "dying") has made me consider a lot of things.  I was thinking while I was on a walk last night that it seems absurd that I should ever have wished my life would end any sooner than nature planned.  There's still so much yet I have to do.




I wonder how many rings I'll have on my stump when I reach the end of my growth.





Sphere: Related Content

Fading Footprints



I've written quite a bit about my friend Kathleen, her departing for more peaceful realms beyond.  That is, she's dying.  She has cancer.  Cholangiocarcinoma... an aggressive form of cancer in the liver and bile ducts.  When she was first diagnosed in May 2008, I asked the doctor (or was it her mother?) to spell it, then went home and looked it up online.  I knew before she did how bad the prognosis.  In fact, it surprised me how little she wanted to know.  (I revealed nothing, but she knew I knew.)


For several months after the initial surgery, it appeared all the cancer had been removed.  But it came back and had metastasized to her lung.  Cancer sucks.  It really does.  This morning my cousin Jackie rightly proclaimed that cancer is "of hell."  Jackie lost her mother to it years ago.  We all know it to be an ugly, cruel assailant, but sometimes it's ugly, cruel AND relentless.  Such is the way of Cholangiocarcinoma.  It's a fucker. (sorry)


I spent last Tuesday with her; our time together was meaningful, productive and loving.  She talked of things she needed to let go or decide on; we remembered good times; we ate Grape Pie; she napped some (while I pretended to).  It was so good to be there, and she seemed serene, if not a little confused at times.  I left reluctantly in the evening, wishing I'd planned for an overnight.  (I didn't know that was an option until I'd arrived.)  


Even though I cried all the way home from Buffalo to Rochester, I left her hospice room feeling certain that my return this week would be more of the same Kathleen, that her condition would not have had time to deteriorate dramatically.   I was encouraged when I spoke with her mother, Marilyn, about Thanksgiving plans at home for the family gathering.


When Kathleen didn't return my call over the weekend, though, I started to feel a sense of foreboding.  Rightly so:  She's still with us in body, but she's leaving very rapidly in spirit, in consciousness.  My conversations with her Monday and today were heartbreaking and haunted me all day both days as I tried to focus on writing deadlines.  The weak-but-upbeat Kathleen of last week has been replaced with an old, hopeless, pained and delirious Kathleen.   It was still her voice, but there was virtually no life in it, and no comprehension except for the knowledge that she hurt and that the pain was not going to stop.  It felt like a huge accomplishment to make her laugh and hear her call me a "goof."  (Extremely rewarding, actually.  I've never been so happy to be an acknowledged idiot!)


It seems unfair that such a kind and generous person, that our Kathleen should wane from life so grievously, so painfully.


Yesterday Marilyn and I discussed the devolving of her own optimism since last Christmas.  She remembered taking down the Christmas tree in Kathleen's apartment, trying to hold on to some sense of hope because, after all, she was still going through chemo treatments, still battling with an off chance of recovery.  But she said that even a year ago, even last Christmas, a part of her knew.  She cried as she put away the ornaments back then, and yesterday when she said of Kathleen's current condition, "I don't want this for her."  


Last Tuesday Kathleen had predicted that she wouldn't survive much beyond Christmas, which seemed unthinkable to me even as I watched her labored breathing while she slept.  Now the consensus is that it would merciful for her to slip away as soon as possible, even before Christmas.  As such, Marilyn told me today that she, as Kathleen's mother, is "hovering."  We're all hovering.


I write about Kathleen as if we're the closest of close friends.  I'm only one of many good friends of hers.  We   shared a house - she upstairs, me downstairs in an old Victorian-style home divided into apartments.  And so we saw each other nearly every day for eight years.  


After we became friends, we used to fantasize about one of us hitting the lottery, and vowed we'd split the pot and buy a parcel of land with two houses -- one for her, one for me.  We actually discussed where we'd most like to settle, and it turned out that one of my favorite places in town happened to be a place she once lived!  We considered each other perfect neighbors.  I'm not sure which of us were more heartsick when I moved to Rochester two years ago.  (Actually, I was.  I persistently tried to talk her into moving somewhere nearby, but she was too rooted to the Victorian.)


It's not that we routinely had riotous good fun together (although we did occasionally), but we were at ease in each other's company, we looked out for and often played nursemaid to each other; we house- and pet-watched; escorted in almost every holiday together (to some degree); performed emergency child pick-ups and drop-offs... you name it.  We're friends, but mostly we're like family...ignoring each other for extended periods, at times, but always there when it matters.


My next visit with Kathleen will be painfully different from my last.  It's not that I feel cheated by her rapid decline (although I do...selfishly).  It's just that I'm not quite prepared to let her go.  


But go she does.  Ready or not, it's nearly time.  I don't envy the journey she's on, but I feel bewildered that she's going someplace far away without me.   


"Kathleen," I whisper, "your footprints are fading in the distance, but that's good, eh?  You always said 'ta ta for now' and I can hear you thinking it!  Ta ta for now."  


I imagine her walking toward some snowy horizon.  I feel I'm in a small crowd of people when I smile and wave politely to the snowy footprints I imagine her leaving behind.  Then I root around for the tissue in my coat pocket.   


Incidentally, of my Kathleen writings and Patty's Kathleen tattoo, she says: 


"Hello, World.  It's good to know I'll be around after I'm gone."


~~~~~~~~~~~~~~~~~~~~~~~~~~~~


Thank you, Owen, for sharing this poem...








The End Of The World     

We went today to clean out
Her mother’s apartment
The movers had already been
The place was nearly bare
And though it was not
The end of the world
I could see it from there

A place once full or warmth and life
Meals rolling out of the kitchen
Onto the long table
The family gathered around
Plants, and paintings on the walls
Armoires full of silverware and plates
Bottles of wine and dusty books
The tiny bedrooms harboring secrets
A crucifix on the wall
Proclaiming faith in something
Damp towels hanging by the shower
Combs and various brushes
All the odds and ends
Which fill our days
And hasten the passing hours

But now the place was bare
And yesterday’s rain
Still puddled on the empty balcony
The tiles in the kitchen
Which I’d never noticed before
Were looking weary and grey
Bearing the cadaverous complexion
Of the unwanted
The parquet strips
Were suddenly showing their age
In the most dismaying manner
Like a threadbare coat
On a public street
The walls which I’d never
Paid any attention to whatsoever
Were covered with sad reminders
Of every scratch and scrape
Over the years
Now naked they stood screaming
In the winter afternoon

How many coats of paint
Would it take
To hide
This sad history ?

Her parents’ rooms
Were at opposite
Ends of the hall
Perhaps toward the end
They called to one another
More likely the doors were shut

Now the rooms are empty
And the hollow echoes hang
In the cold winter air
And though it was not
The end of the world
I could see it from there
  



Sphere: Related Content

Tuesday

December Comes


It's as if Mother Nature awoke in the night to remember that the calendar page had turned to December.

After a confusing weatherly weekend of sun and wind and rain and sleet and balmy calms and breezes and damp stillness, she's at last settled on a season.

It was thrilling to wake up to snow on the ground... beautiful in the low morning light.  (But I didn't get out with the camera until it was bright and brisk.)


The first of December... first snow and a welcoming of winter boots and snowbrushes.  Happy!
Sphere: Related Content